I have had alot of messages from people after posting a recent photo of myself because of how different i look. Alot of you probably dont know how poorly i have been. I have lost alot of weight but there is also a sadness and a story beyond what you can see that i have decided i am finally ready to share.
You have seen the adverts on TV where the public are warned of antibiotic resistance dangers, well unfortunately they came out after i was diagnosed. ( I have noticed these adverts seem to have dissapeared now) As part of the campaign doctors are warning that deaths linked to antibiotic resistance will rise. In just over 30 years, when the current generation of children are grown up, they believe antibiotic resistance will kill more people than cancer and diabetes combined and without effective antibiotics minor infections could become deadly and many medical advances could be at risk. Surgery, chemotherapy and caesareans could become simply too dangerous.
I was given no end of antibiotics during and after the birth of my daughter and was given no warning of the risks or side effects of taking them. I wasnt given a choice even though many of them were to prevent infections. Even after being diagnosed with a C diff infection i was given no knowledge of this illness.
I have felt very let down by the doctors and hospital. They have over prescribed the wrong antibiotics putting me at greater risk of antibiotic resistance. The hospital wouldnt release the antibiotics i needed to treat my infection because i was an outpatient in the community, but no pharmacy could get them for me because they were too expensive, They kept saying they had sent off referrals for some mental health support when they hadnt and because of this i have had to wait over 4 months for any support. I have also had unhelpful comments such as ‘People your age dont get this its old people who get it.”
Well i am proof they do and after doing my own reasearch i found a support group with people of all ages and circumstances suffering. I have been talking to other young mums who have had this after the birth of their child, a prolonged stay in hospital and taking broad spectrum antibiotics. Reading stories from other C diff survivors has helped me not to feel so alone and gave me knowledge, support and hope.
C difficile bacteria can be found in hospitals, nursing homes, in the community, in the soil, water and in processed foods also about 3 in 100 healthy adults and 7 in 10 healthy babies have a number of C. difficile bacteria living in their gut. The number of C. difficile bacteria that live in the gut of healthy people is kept in check by all the other harmless bacteria that also live in the gut but when you take antibiotics your gut flora is wiped out and that leaves you vunerable to infections that unfortunately are hard to treat.
I am trying to raise awareness of this superbug. A C diff infection knows no boundaries it can be aquired by anyone, at any age and in any location and even when the physical sympoms have gone C diff has a deep and lasting effect on you and those around you.
Be aware of the risks of taking antibiotics i wish i had known the possible side effects.
My doctors surgery have now put information packs around the surgery to educate patients since i complained about the lack of public awareness and information. I feel we should all know the risks before going into hospital or being prescribed any antibiotics.
I still think more should be done, leaflets should be given out with every prescription of antibiotics and probitoics should be given along side them to help protect you. I hope others dont go through what ive been through but if i have made a difference for one person it has been worth it. I am still fighting to be heard and the microbiology lab at Kettering General have now changed their policies to be able to prescribe to outpatients.
Without the love and support of my fiancè, mum, family and friends i really dont know how i would have made it this far. I hope you all take the time to read my story if you share it could you please share the whole thing not just the story. Thank you xx